Research in Alpha-1 Antitrypsin Deficiency is needed in order to better understand the disease, to understand what causes emphysema and/or liver disease in only some people with the condition, and to improve current treatments. Human subject participation in research is crucial. The University of Florida Alpha-1 Research Program has developed at team of scientists, nurses, and administrators to conduct a number of clinical trials and other research projects for individuals who have AAT Deficiency, their family members, and other eligible participants.
For more information about participating in a research study, click here.
If you would like to be notified and given a chance to take part in Alpha-1 research projects be sure to join the Alpha-1 Research Registry. The Alpha-1 Research Registry is a confidential database of individuals diagnosed with Alpha-1 as well as carriers of Alpha-1. As a member of the Registry, you will be updated on recent developments in Alpha-1 research and notified of studies in which you may be eligible to participate. Contact the Alpha-1 Research Registry by calling 1-877-886-2383, sending an email to alphaone@musc.edu, or visiting the Registry website at www.alphaoneregistry.org.
Studies Currently Enrolling Participants:
- Genetic Modifiers
- Early Onset COPD
- Tobacco Smoke Induced Cell Injury in Lung Compartments
- Gene Therapy
- Alpha-1 Foundation DNA & Tissue Bank
